The MS Project – Volume 2

The MS Project is a collection of things created to raise awareness for Multiple Sclerosis. Consisting of a book, a website, apparel, and an iPhone app these elements work together to bring more attention to the disease, teach people, and create a strong community.

The book – Volume #2 scheduled for release on March 15^th, 2012 is a collection of stories written by people afflicted by Multiple Sclerosis, or who have loved ones afflicted. This book is meant to be informational regarding the disease as experienced by real people and to showcase the amazing strength people find when facing adversity.

The website – is a social networking site where people passionate about raising awareness for the disease can become members and get to know one another. The goal is to create a community to provide support, awareness, and motivation to people within and outside the community. You can currently access the website at http://www.themsproject.com.

The formal dining room in my house has never actually has a dining room table in it. It is a warehouse for all sorts of paraphernalia including the Orange is the new pink T-Shirts to promote awareness for Multiple Sclerosis. The other day my five year-old daughter was helping me to organize the shirts into size groups and then I was putting labels on them. Well today I went to get a couple shirts to mail out and I was looking at the piles and all the larges were gone. I looked over and over and could not find the piles of large T-Shirts I swear were there the other day. I kid you not, for about five minutes I was completely freaked out. I had no idea where those shirts had went to. I mean they were right there in between the medium and the extra larges. Wait a minute. There weren’t any larges anywhere. the sizing went right from medium to XL. That wasn’t possible I thought. What the heck happened to my larges!!

After a few seconds I realized that some of the X’s on the XL labels were crooked. Upon closer look they were definitely not my hand writing. I finally realized my daughter must have went in later and put X’s in front of all my L’s. Perhaps she thought I had forgot? Cute but for a minute I thought I was losing my mind.

Laina

by Lisa Emrich

What Does MS Equal To You?

MS = a twisted roller coaster, spiraling and without brakes.

I can’t recall the last “real” roller coaster I rode.  Honestly, I’m trying to rack my brain.  Was it during a visit to Disney World in 1985?  Or could it have been in a car driven by a speed demon? (That would be a figurative roller coaster, of course.)

During one ride, the anticipation and excitement about being strapped into a seat and allowing your body to be whirled through the air is intoxicating.  During the other ride, eyes are closed, feet are trying to push the imaginary brake pedal in the passenger seat, and the adrenaline rush is exhausting rather than exhilarating….read more

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Related articles

• What Does MS Equal To You? (brassandivory.org)

by Pamela Bascio

I came across this blog post and although it is almost a year old I just felt it was right from the heart and you would find it meaningful……..

After ten years – not all happy, my husband and I are going to divorce. It’s ok. We still get along – for our kids, for my step-kids.
He’s a good person, just not a care-taker. I’m a good person, just not used to having to need someone to take care of me. And I KNOW I’ve been really more bitter since I was diagnosed with MS. But the support wasn’t always there, which led us to this point. Read More

Download The MS Project iPhone app

I talk to so many Fellow MS’ers everyday and I listen to what each has to say. Life with Multiple Sclerosis is a Day to Day battle. Some days may be better then others but even on those days we have pain and still carry Guilt and Depression everyday.

We carry our own guilty feeling and battle our own depression every hour of every day, but we also carry the guilt and depression brought on by our loved ones. There are some that have very understanding loved ones, but even they will slip at some time with a comment or two. Here are some of the most major MISCONCEPTIONS and random quotes from some of the people I have talked to and I have faced myself. I want to add some clarity to those misconceptions. read more

Related articles

• Multiple Sclerosis: Helping Loved Ones Cope With Depression (everydayhealth.com)
• How Caregivers Can Help During an MS Flare-Up (everydayhealth.com)
• Carnival of MS Bloggers #83 (brassandivory.org)

This week is National MS Week. In efforts to promote awareness for the disease I am rolling out an initiative called, The MS Project. It includes a book, a website, and iPhone app. Profits from the book and iPhone app go to MS and the website is a community for people whose lives cross with MS.

The MS Project is a collection of things created to raise awareness for Multiple Sclerosis. Consisting of a book, a website, apparel, and an iPhone app these elements work together to bring more attention to the disease, teach people, and create a strong community.

The book – scheduled for release on March 14^th, 2011 is a collection of stories written by people afflicted by Multiple Sclerosis, or who have loved ones afflicted. This book is meant to be informational regarding the disease as experienced by real people and to showcase the amazing strength people find when facing adversity.

The iPhone app – is a tool to create awareness for Multiple Sclerosis. Connected to The MS Project website the app will include a feed from the blog to provide access to the MS community and a wealth of knowledge. The app is schedule for release March 14^th, 2011.

The website – is a social networking site where people passionate about raising awareness for the disease can become members and get to know one another. The goal is to create a community to provide support, awareness, and motivation to people within and outside the community. You can currently access the website at http://www.themsproject.com.

The MS Project, the book, is now available for – purchase at  The MS Project website or Amazon.

The MS Project

The MS Project is a collection of things created to raise awareness for Multiple Sclerosis. Consisting of a book, a website, apparel, and an iPhone app these elements work together to bring more attention to the disease, teach people, and create a strong community.

The book – scheduled for release on March 14^th, 2011 is a collection of stories written by people afflicted by Multiple Sclerosis, or who have loved ones afflicted. This book is meant to be informational regarding the disease as experienced by real people and to showcase the amazing strength people find when facing adversity.

The iPhone app – is a tool to create awareness for Multiple Sclerosis. Connected to The MS Project website the app will include a feed from the blog to provide access to the MS community and a wealth of knowledge. The app is schedule for release March 14^th, 2011.

The website – is a social networking site where people passionate about raising awareness for the disease can become members and get to know one another. The goal is to create a community to provide support, awareness, and motivation to people within and outside the community. You can currently access the website at http://www.themsproject.com.

The MS Project, the book, is now available for pre- purchase at 25% off at The MS Project website or Amazon.

About Laina Turner-Molaski:

Laina Turner-Molaski, is a businesswoman, mom, author, professor and consultant.

“The MS Project” is her fourth book. Human Resource and Retail Management Specializations in the School of Undergraduate Studies. Dr. Turner-Molaski is also an author of both fiction and non-fiction and a business consultant.

Marc Lerner was diagnosed with MS on May 15th 1981. Instead of taking a back seat to the disease Marc said “this has been an amazing challenge and a journey of self-discovery.” He wrote a book, A Healthy Way to be Sick, to share how he learned to cope with a chronic illness. Marc said “I found that, no matter what the challenge we face, the key to consciously deal with it is found in The Wisdom of the Body. I have found that the natural reaction of a person in a struggle is to look outside for the solution. By developing one’s inner wisdom, you can consciously participate as a partner with your doctor.”

Marc has an inner strength we can all learn from. It is hard to face any challenge life throws in our path without wanting to run toward finding that easy solution. But really when it comes down to it we must be strong. Stay strong and fight to overcome any challenge.

For National MS Week 2010, Marc was featured in his local paper,
AnnArbor.com on 3-17-10.

Marc also gives tele-seminars for the chronically ill and disabled to teach
them four main life skills; positive self-image, self-trust,
freedom from negative thinking, connecting to The Wisdom of
the Body. marc says “In my seminars, I am often told by the
participants that these are the skills that everyone
needs—not just those in a health crisis. In 1982, I
founded Life Skills Institute and continue to serve as its
president. Please go to A Healthy Way to be Sick to
review my e-book, which was endorsed by Bernie Siegel. Go to
Life SKills Inc to view the rest of my work.”

Thanks Marc for being a positive role model and such an advocate for Multiple Sclerosis.
Laina

Raising awareness for Multiple Sclerosis. That is what The MS Project is, does, and stands for. If you keep up with my blog you will know that I am working on a book which is a compilation of stories by people who have MS or who have a loved one with MS. First, I have to say this has been an amazing project to work on. I have met some many great and courageous people who have submitted their stories and shared with me and I truly appreciate it. However, I have to admit the putting together of all the stories has taken me a lot longer than planned. My deadline to get this done and to the printer is Monday and I am not even close to having it ready. Why? Not just because of my typical procrastination but rather this has been so incredibly difficult. I can’t sit down to edit without crying at least once. Not because the stories are so sad but because they are so strong and full of hope.While it has been tough I am so thrilled that I have this great honor.

Thank you everyone!

Laina

Related articles

• Multiple Sclerosis Resources (everydayhealth.com)
• Women with MS more likely to have MS-related gene than men (physorg.com)

Campaign – Orange is the new pink

WHY is this important to me?? See my website.

What’s coming…..

Orange is the new pink – raising awareness for Multiple Sclerosis…
1. The BOOK (ebook and paperback form)
2. The iPhone app
3. The website

The book idea started when I was promoting awareness for National MS week and World MS day last year and had guest bloggers and read so many fascinating stories that were uplifting and inspiring. I wanted to share these amazing stories and help create more awareness for the cause at the same time.

The book will launch that goal. The iPhone app will be .99 and the majority of profits will go to the MS society. The iPhone app will have informational pieces and be linked to a blog where I hope more people will participate by posting their stories.

I am collecting donations for the iPhone app and website development and to off set book costs. Sponsors will be listed as a sponsor on both the app and website with any relevant info/links.

The original goal was to have the book out by the holiday but due to the absolutely overwhelming response of folks wanting to be included I have decided I would rather take more time and make sure it is as great as it can possible be so launch dates are as follows.

National MS week is March 14th-20th, 2011 so I felt launching these elements March 1st, 2011 will give time to really build some momentum for National MS week that will carry through World MS day on May 26th and through the walk/bike race seasons.

I will send out updates to keep you informed. If you want to contribute, or know someone who has a story, contact me at laina@lainaturner.com.

“Like” the facebook fan page I will also post updates there and want to build the fan page so when the site is ready it will be an easy migration.

If you want to donate and be a sponsor click here.

I should have screenshots available for the website soon.

Laina