Comments on: The MS Project http://www.lainaturner.com being fabulous is a skill Sat, 11 Feb 2012 11:06:06 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: laina http://www.lainaturner.com/multiple-sclerosis/#comment-451 laina Fri, 29 Jul 2011 00:59:18 +0000 http://lainamolaski.com/?page_id=18#comment-451 Thank you! Thank you!

]]> By: Tina Bassett http://www.lainaturner.com/multiple-sclerosis/#comment-450 Tina Bassett Fri, 15 Apr 2011 22:14:53 +0000 http://lainamolaski.com/?page_id=18#comment-450 My Mother was diagnosed in the early 80s. She passed away in 2000 as well. The cod on her certificate was pneumonia which she had struggled with on and off for years. Its heartbreaking growing up knowing there is absolutely nothing you can do. I lost my Mother at 18. I help MS research to spare other children the childhood my siblings and I missed. Keep Fighting!!! My Mother was diagnosed in the early 80s. She passed away in 2000 as well. The cod on her certificate was pneumonia which she had struggled with on and off for years. Its heartbreaking growing up knowing there is absolutely nothing you can do. I lost my Mother at 18. I help MS research to spare other children the childhood my siblings and I missed. Keep Fighting!!!

]]> By: Bean http://www.lainaturner.com/multiple-sclerosis/#comment-449 Bean Thu, 20 Jan 2011 01:53:29 +0000 http://lainamolaski.com/?page_id=18#comment-449 Its common to mistake someone with MS as a drunk, especially as they strive to be independently mobile. I was only 23 when I was diagnosed and the stumbling, veering gait was one of my first and most prevalent symptoms. I can't tell you how many times I was stopped on campus, even though I was living in Spokane at the time, an epicenter for MS. Back in the 80s it was extremely rare to be diagnosed in your 20s, it was assumed that MS hit its victims in their 40s. Its common to mistake someone with MS as a drunk, especially as they strive to be independently mobile. I was only 23 when I was diagnosed and the stumbling, veering gait was one of my first and most prevalent symptoms. I can’t tell you how many times I was stopped on campus, even though I was living in Spokane at the time, an epicenter for MS. Back in the 80s it was extremely rare to be diagnosed in your 20s, it was assumed that MS hit its victims in their 40s.

]]> By: laina http://www.lainaturner.com/multiple-sclerosis/#comment-448 laina Wed, 19 Jan 2011 15:56:01 +0000 http://lainamolaski.com/?page_id=18#comment-448 The drunk comment...funny because it hits home. When I got married my mom had been in a wheel chair for about a year full time. She really wanted to walk down the aisle so her doctor pumped her full of steroids and B-12 and while she was able to walk it was with 2 people helping her and wasn't pretty. A few years later after she passed we were watching the video with some friends who hadn't known my mother and one of them made a joke about her being drunk before it started. At that point I laughed but I will tell you that person still feels bad abut making that comment and it's been years:) The drunk comment…funny because it hits home. When I got married my mom had been in a wheel chair for about a year full time. She really wanted to walk down the aisle so her doctor pumped her full of steroids and B-12 and while she was able to walk it was with 2 people helping her and wasn’t pretty. A few years later after she passed we were watching the video with some friends who hadn’t known my mother and one of them made a joke about her being drunk before it started. At that point I laughed but I will tell you that person still feels bad abut making that comment and it’s been years:)

]]> By: Bean http://www.lainaturner.com/multiple-sclerosis/#comment-447 Bean Wed, 19 Jan 2011 11:03:26 +0000 http://lainamolaski.com/?page_id=18#comment-447 I was diagnosed with MS in 1987 but this is the first time that I have heard Orange being associated with MS. There is a tremendous amount of ignorance about this disease. I can't tell you how many times people just assumed that I was drunk when I was stumbling and/or struggling with my speech. The ups and downs of MS are hard to live with but even more difficult to explain to others why I am confined to bed for two weeks last month but can get around with my walker and service dog the next month. To explain why some days I don't have the energy and coordination to form a sentence but I am not stupid. I actually found your site because I am seeking opportunities to win an iPad for the Verbal Victor app to help me communicate with others on my bad days. I am sorry for you loss of mother and I commend your efforts to increase the awareness of MS. Thank you I was diagnosed with MS in 1987 but this is the first time that I have heard Orange being associated with MS. There is a tremendous amount of ignorance about this disease. I can’t tell you how many times people just assumed that I was drunk when I was stumbling and/or struggling with my speech. The ups and downs of MS are hard to live with but even more difficult to explain to others why I am confined to bed for two weeks last month but can get around with my walker and service dog the next month. To explain why some days I don’t have the energy and coordination to form a sentence but I am not stupid. I actually found your site because I am seeking opportunities to win an iPad for the Verbal Victor app to help me communicate with others on my bad days.
I am sorry for you loss of mother and I commend your efforts to increase the awareness of MS.
Thank you

]]> By: Sherri http://www.lainaturner.com/multiple-sclerosis/#comment-446 Sherri Mon, 10 Jan 2011 18:29:55 +0000 http://lainamolaski.com/?page_id=18#comment-446 I am so happy and thankful that you are promoting MS awareness. It is amazing to me how few people are aware of the MS campaigns, the orange devotion, and more importantly - what the disease is and how it impacts our lives. Every day it seems I "find" someone else who has this disease. Maybe it's just because my awareness level has been raised.... since being diagnosed that only makes sense. I will be ordering a hoodie soon.. these are just right up my alley! Thank you for all you do! I am so happy and thankful that you are promoting MS awareness. It is amazing to me how few people are aware of the MS campaigns, the orange devotion, and more importantly – what the disease is and how it impacts our lives.

Every day it seems I “find” someone else who has this disease. Maybe it’s just because my awareness level has been raised…. since being diagnosed that only makes sense.

I will be ordering a hoodie soon.. these are just right up my alley!

Thank you for all you do!

]]> By: laina http://www.lainaturner.com/multiple-sclerosis/#comment-445 laina Mon, 03 Jan 2011 19:51:55 +0000 http://lainamolaski.com/?page_id=18#comment-445 Emily I definitely am. I will email you. Emily I definitely am. I will email you.

]]> By: Emily Gauthier http://www.lainaturner.com/multiple-sclerosis/#comment-444 Emily Gauthier Mon, 03 Jan 2011 19:07:36 +0000 http://lainamolaski.com/?page_id=18#comment-444 I made a video for a contest that the MI chapter held to increase MS awareness. Here is the link: http://www.youtube.com/watch?v=NQRoiXAmMdc I won the contest and used the video to help solicit funds for my Bike MS rides. Not sure if you're still looking for contributors for your book, if so I'd be happy to share my story. You have my email address above. I was diagnosed with MS almost 4 years ago in the most bizarre way. I've moved forward and am doing great, and live a VERY active life!!!! Wishing you all the best!!!! Emily I made a video for a contest that the MI chapter held to increase MS awareness. Here is the link: http://www.youtube.com/watch?v=NQRoiXAmMdc I won the contest and used the video to help solicit funds for my Bike MS rides. Not sure if you’re still looking for contributors for your book, if so I’d be happy to share my story. You have my email address above. I was diagnosed with MS almost 4 years ago in the most bizarre way. I’ve moved forward and am doing great, and live a VERY active life!!!! Wishing you all the best!!!!

Emily

]]> By: laina http://www.lainaturner.com/multiple-sclerosis/#comment-443 laina Mon, 20 Dec 2010 14:36:21 +0000 http://lainamolaski.com/?page_id=18#comment-443 We can all work to make a difference! We can all work to make a difference!

]]> By: Ursula Avery http://www.lainaturner.com/multiple-sclerosis/#comment-442 Ursula Avery Sun, 19 Dec 2010 02:30:38 +0000 http://lainamolaski.com/?page_id=18#comment-442 I was recently diagnosed with MS. I would like to thank you for you efforts. I am still learning what this is all about but am now an ardent "orange" supporter. I was recently diagnosed with MS. I would like to thank you for you efforts. I am still learning what this is all about but am now an ardent “orange” supporter.

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